Learning Packets Link

Understanding Deaf-Blindness


This set of materials has been collected and organized to assist visitors in learning more about combined vision and hearing loss and its implications on life and learning. Additional resources can be found at the National Center on Deaf-Blindness (NCDB) website.

Introduction

Children Who Are Deaf-Blind  Oficina-PDF-icon 24px.png .pdf
Overview of this diverse, low incidence population, including pictures and profile descriptions.

Large Print and Spanish versions are also available. 

Understanding Deafblindness  Oficina-PDF-icon 24px.png .pdf
A chapter from the book Remarkable Conversations, an acclaimed resource on deafblindness. 

I Wish I Had Oficina-PDF-icon 24px.png .pdf
Parents offer reflections, experiences and hopes for the future.   

A Spanish version can be found at http://documents.nationaldb.org/products/Iwish-span.pdf 

 

The Many Faces of Deaf-Blindness
This presentation provides an introduction to children with deaf-blindness. It includes slides that can be customized with individual state data.

The Many Faces of Deaf-Blindness (Illinois)  presentation-icon 24px.png .ppt
The Many Faces of Deafblindness (Michigan)  presentation-icon 24px.png .ppt
The Many Faces of Deafblindness (North Carolina)  presentation-icon 24px.png .ppt


Overview on Deaf-Blindness Oficina-PDF-icon 24px.png .pdf
Fundamental information for all audiences on topics including causes, challenges, communication, orientation and mobility, education, transition and family issues.   

 Deaf-Blind Support Structure  Oficina-DOC-icon 24px.png .doc
Illustration of relationship between programs and organizations that support children and adults with deaf-blindness. Can be customized for individual states.


Causes of Deaf-Blindness

Risk Factors for Combined Vision and Hearing Loss  Oficina-PDF-icon 24px.png .pdf
One-page handout with conditions listed in categories.

Points to Consider about Etiologies  Oficina-PDF-icon 24px.png .pdf
Etiology means the cause of a child’s medical or disability condition. This fact sheet covers reminders about the role of etiologies in a family’s life.

Tell Us About Your Child  Oficina-DOC-icon 24px.png .doc
Worksheet to introduce a child with deaf-blindness to other parents; can be adapted for other disabilities 

Etiology Research  Oficina-DOC-icon 24px.png .doc
Worksheet for partnering with another family member to explore an unfamiliar diagnosis or condition 

Families Matter  Oficina-HTML2-icon 24px.png web
Web portal to information and resources for families of a child with deaf-blindness.

National Data  Oficina-HTML2-icon 24px.png web
The National Center of Deaf-Blindness conducts an annual count of children with deaf-blindness using data submitted by each U.S. state. This list contains causes of deaf-blindness and the numbers of children reported in 2012. Etiologies can also be viewed by frequency.

 

Helpful Websites

Resources for finding information and family support related to particular diagnoses.

1. National Organization for Rare Disorders NORD  Oficina-HTML2-icon 24px.png web

2. Genetic and Rare Diseases Information Center (GARD)  Oficina-HTML2-icon 24px.png web

3. Multiple Disabilities  Oficina-HTML2-icon 24px.png web
Center for Parent Information and Resources (CPIR) webpage that contains information to increase understanding about the implications of multiple disabilities, including definitions, resources and tips.

Communication and Learning

Talking the Language of the Hands to the Hands Oficina-PDF-icon 24px.png .pdf
Article describing the importance of hand development for the purposes of exploring and communicating. Includes tips on teaching skills to facilitate hand development and expressiveness. Versions in Spanish, Danish, German and Swedish can be found at .

 Early Interactions Oficina-PDF-icon 24px.png .pdf
Helpful information about how to interact, play and communicate in ways that help create a bond of trust and support early learning.

Harmonious Interactions  Oficina-PDF-icon 24px.png .pdf
Descriptions of effective strategies for facilitating exchanges that provides a foundation for relationships, communication and learning.

It Takes Two  Oficina-PDF-icon 24px.png .pdf
Overview of the basics involved in communication interactions.

Expressive Communication  Oficina-PDF-icon 24px.png .pdf
Guide to understanding how children send messages to us, how best to respond to their efforts and how to provide opportunities that support progressive improvement. 

 Receptive Communication  Oficina-PDF-icon 24px.png .pdf
Guide to understanding how children respond to messages from us and how to plan effective strategies to support communication. 

 Developing Concepts  Oficina-PDF-icon 24px.png .pdf
Increases understanding of the impact of deaf-blindness on grasping the meaning of objects, people and ideas in the world. Provides tips on how to teach concepts that come easily to most people. 

Literacy

Here are resources with information about providing meaningful literacy learning activities.

1. Literacy for Persons Who Are Deaf-Blind  Oficina-PDF-icon 24px.png .pdf

2. All Children Can Read  Oficina-HTML2-icon 24px.png web
A website for families and educators with explanations about how literacy develops as well as strategies, tips and examples.   

Path to Symbolism  Oficina-PDF-icon 24px.png .pdf
Easy to understand guide describing how to support children in developing increasingly complex communication abilities. 

Large print and Spanish versions can be found athttps://nationaldb.org/library/page/1924.

Recreation and Leisure  Oficina-PDF-icon 24px.png .pdf
Explains the important reasons for ensuring recreational activities are a part of life for individuals with deaf-blindness and provides information that can help overcome the challenges of making it happen.  

Home Talk: Family Assessment of Children Who Are Deaf-Blind  Oficina-PDF-icon 24px.png .pdf
Tool for gathering important information to share with educators and caregivers to assist in planning meaningful activities.

A Spanish version can be found at https://nationaldb.org/library/page/789